Barbara Monday continues her story of the journey to seek community living for persons with disabilities in Rome, Georgia.
Setting up the DIGS, Inc. non-profit corporation was found to be the easiest step in our primary mission to provide housing. As we met and discussed our plan with others knowledgeable about construction costs, we developed a goal of $250,000 for our first personal care home. This was a very conservative goal with the hopes of receiving community support in the form of donations of goods and services. Although we are a very focused and determined group, none of us had much experience with fundraising and other roadblocks soon became evident. As a newly formed nonprofit, the community had no knowledge of us and our mission. We had no ‘track record’ of any accomplishments or evidence we could or would stay in existence. The most surprising obstacle was the degree of discrimination and fear that still exists towards adults with developmental disabilities living in personal care homes in the community. We all recognized it was going to take us a long time to build our first home.
After several meetings and brainstorming sessions, we realized we could move forward much more quickly with other parts of our mission statement. We had so many good ideas for leisure opportunities based on our adult children’s special interests and abilities. The city/county recreation authority agreed to help with places to meet. A special education teacher with a background in music agreed to be our choir director and the ‘Just As I Am’ choir was established in November 2007. Armed with a Christmas music cd and a t-shirt for each participant, the first performance took place in the food court of our local mall. What magical joy each participant and parent/caregiver experienced that night! It didn’t matter that some had difficulty speaking and only some could sing. Everyone was a performer. A large audience of friends and shoppers gathered and shared this special moment. What a wonderful gift to all!
The choir has helped to further the mission of DIGS in many more ways than expected. They perform regularly and receive donations. Word has spread through the community about the choir and what DIGS is all about. But most importantly they have helped to form a cohesive group that has become a ‘family’. Many parents/caregivers did not know each other and now are a support group to ‘go to’ with questions about the system, concerns about handling difficult situations, carpooling to performances and more. We all share the joys of watching our ‘children’ grow in their performing abilities, increased self-esteem, confidence and friendships. We have also discovered that although each individual’s story of disability is different, we all share the common bonds of frustration (sometimes), guilt (sometimes), grief (sometimes) and unconditional love (always).
We knew we were now on the right path and the Snap Happy Camera Club was formed in the spring of 2008. We planned for about ten to join but, nineteen attended the first meeting. It appeared that our ‘adults’ were so hungry for activities to do where they felt accepted, they would attend anything…..even if it was something they had no interest in. The attendance has now dropped to about fourteen regular members. Using ‘point and shoot’ digital cameras, they enjoy going to different places of interest in the community to take pictures once a month. Curious onlookers will ask who we are. They are impressed by the devotion of the photographers and the joy they show when they find a ‘good shot.’ Once a year, their photos are entered in the local fair with no special designation. Some have won honorable mention ribbons. The local convention center has a display of their work. Using a strength with visual skills and unique perspective on the world, there has been a noticeable growth in their abilities since the club was formed. Many take their cameras with them on vacation or around town and are using their cameras independently, just like anyone else.
Recognizing some true artistic ability by some of our members and love of creating by others, we next formed Art Hearts art club in 2009. Volunteer art instructors teach a variety of skills from water color, acrylic, collage, to working in clay. Membership is limited to fifteen, so each member will have the time, attention and space to work. Many parents/caregivers stay to lend a hand with passing out materials or extra help with the project. Without exception, art instructors want to sign up again to teach a class. They will often remark about the genuine nature of our adults, the joy they show in their work and the appreciation they show towards the instructor. Many of the projects become gifts for someone they care about. Adults with developmental disabilities often don’t have the money or opportunity to purchase gifts for family and friends. What a boost in esteem and feeling of independence it must be to give such a gift.